Having 8 kids isn't crazy, it's an adventure!

Monday, May 28, 2012

Therapy Decisions

With Lia ending her 3 years in the Help Me Grow program, her therapy has stopped.  The school system is supposed to pick up her therapies, but that has been a fiasco.  We finally got her evaluation on Friday, still no appointment for the meeting to set up her IEP.  All of this should have been done before Lia turned 3, on May 7th.  Essentially what this means is that Lia is without therapy until the school year starts in Sept.  It wouldn't be too bad, except that when she went to the CP clinic at Nationwide Children's last week they noticed that Lia has lost range of motion and has increased muscle tightness since her appointment 2 months ago. sigh. They revisited the idea of Constraint Therapy to us.  It is a very intensive program, but after reading about it and seeing Lia moving backward in muscle tone and movement, we are considering it seriously for the first time.  They first mentioned this therapy to us when Lia was only 2 months old, so it has been 3 years :)  We're praying about it.  It would be very expensive and time consuming.  Daily therapy and casting of Lia's arm down at Nationwide for at least a month.  With 8 children that is a lot of time!  It would never work during the school year, since Justin is in school, Alyssa has classes at the local high school and MCS, and Levi has preschool 3 afternoons a week, plus me homeschooling the 3 middle children.  Add in that Luke is still nursing 4 times a day, and I see a perfect storm of reasons why this won't work.  But, it is a 3 month window of opportunity that we only get once a year. I'll be setting up the appointment to talk to the PT/OT in charge of the CIT program tomorrow.  While Mick and I are in Colorado next week, I am using the time for prayer and planning for the next school year.  This mama is in need of a break :)  Luke of course will be with us, but compared to my normal routine and days these will definitely be vacation days for me :)

1 comment:

  1. Hey there!!!
    I'm a little slow, I just now found your blog!!!
    I;m so excited to be able to follow what the Lord is doing in your life.
    I'm praying for you and your family!
    Blessings,
    Carra

    ReplyDelete